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When the Body Decides to Stop Following the Rules

Every day over breakfast, I fill three pillboxes. Fifteen pills in the morning, 3 at lunch and 8 before bed, for a total of 26. To my surprise, I find pleasure in the sorting, as it is one of the few moments when I can pretend I have some control over the bizarre war raging in my colon.

When I learned 11 months ago at age 29 that I had a chronic illness, I understood that my life was going to change. I knew I would stop eating certain foods, limit stress and think more strategically about when to have children. What I didn鈥檛 anticipate was the loss of control over my life that I thought I had, until the gastroenterologist uttered the words 鈥渦lcerative colitis.鈥?br> He explained that for reasons unknown, my immune system was ravaging the walls of my large intestine, mistakenly trying to fight off a nonexistent foreign invader. Short of removing the colon, he said, there was no cure 鈥?leaving me to contend with unpredictable bouts of abdominal pain, bloody diarrhea, fatigue, weight loss, dehydration and night sweats. Forever.
Before my illness, I didn鈥檛 realize I had been operating on the assumption that there was an equation to explain how things played out. It was almost like physics. If I followed certain rules, I would get the desired outcomes. I wanted to lose 10 pounds. So I quit eating after 8 p.m. and watched my waist shrink.
I wanted to find a good man. So I treated strangers with respect and am now engaged to my best friend. It didn鈥檛 always work. But generally, if I made the investment, I got the return.
But incurable illness doesn鈥檛 operate that way. Dealing with it is not about studying harder or developing a regimented routine. Nor is it about karma, becoming a better person or learning to like leafy greens. Rather, it is about hope, about believing that things will work out even if I don鈥檛 know how.
It鈥檚 hard. Not only am I adjusting to a chronic illness, but I鈥檓 also accepting that I am vulnerable to countless things beyond my control 鈥?that great haze that is the unknown.
With ulcerative colitis, the unknown is exploding around me like cannon balls. I could end up in the hospital with liver failure induced by my medicine. I could experience a vicious flare-up that results in the complete removal of my colon. These are only two of many possibilities, all of them frightening.
When I get scared, I focus on a definition of fate provided to me by a professor in college. Describing an ancient Greek perspective, he explained that fate could be imagined as a plot of fenced land. The individual cannot control where the fence stakes are placed. But every person determines for herself how she maneuvers within the enclosed space. That I have ulcerative colitis is a fence post hammered into the ground at a very unfortunate angle. How I live my life with the disease is my decision.
And my decision is to be hopeful. There is evidence to support that hope. For starters, those 26 pills, which represent the achievements of a host of scientists and the sustained investments of pharmaceutical companies. With so many resources invested in my disease, it is likely that medical advances will generate improved therapies.
I feel hopeful, too, when I consider the immense creativity of the natural environment. In a world with the imagination to invent emeralds and giraffes, Spanish moss, hound dogs and icicles, it鈥檚 not quite so hard to believe that my life will evolve nicely, with or without the benefit of organizational tendencies.
Trusting in something outside myself is difficult. But I can say that I am learning to believe that things will work out well, just because they will. In one form or another, my life will continue, and it will continue to include the man I am marrying, family, friends, helpful strangers, gregarious toddlers. At least, it will for now. And that鈥檚 a start.

the article seems great depth in your understandings.but your problems are stemming from relying totally on reg allopathic meds to cure everything.which in factual facts,they really don,t cure much at all,only deal with symptoms and not any underlying causes.right off the top i know you have gut dysbiosis with all your symptioms.your good gut flora has been killed off with not only all the meds you take but also a very poor diet.this all equals gut dysbiosis and sickness to follow.with all those meds how can one expect to ever regain health.your own immune system can and will keep you in health,,,if given the right stuff to strengthen it everyday.sugar in any form will only add and give more power to any ills.fast food and microwaves also detracts health.a more narural raw foods,home cooked organic type life will heal a lot of ills if not let go on.you need good probiotics and a lot of them to regain your gut health back and be able to eliminate some of the meds with drs ok.from the mouth and down thru your digestive sys and out,our own good essential bacteria is what keeps us all healthy.75% of our immune sys starts in the gut,,when in correct balance.when it,s not,we end up with all/some of the symptom/problems you have.check out know the cause.com,bio nutrition.com,bio nutrients.com,bio innovations.com,nsc 24.com and also dr ohiras probiotics.there most certainly is hope and also cures,but not when taking all those meds,which under your drs suppervision can help you get off.first find and take a good probiotic to start the process.probiotics are what is in a good organic yougurt without added sugar and also keffir can help.i hope you check out some/all of those web sites for more info for yourself.

I think this is an excellent description of adjustment to chronic illness. The title, however, doesn't quite seem to suit the content of the piece. Other than that - I think it's outstanding.

There is NO problem with the article. It well expresses the emotions one experiences while living with a chronic disease. I, too, have every reason to believe that something good will continue to come out of this unfortunate situation. I hear your hope and applaud you for taking this high road instead of the road to self destruction...pity.
As you believe in a power greater than yourself, so shall your belief be rewarded ten-fold as the universe gives back to you. You may or may not understand the nature of the gift you've given to the many who read this post. Thanks

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